Patient and Family Resources
The Texas Center for Pediatric and Congenital Heart Disease is committed to providing both whole-patient and whole-family care and is dedicated to making every childhood the beginning of a healthy and happy life. We believe every child and their family deserves the best possible care, which is why we’ve compiled a list of resources that may be beneficial to you and your family.
Dell Children's Medical Center
- Patient and Family Handbook
- Una Guía para el Paciente y su Familia
- Patient and Family Resources
- Patient and Family Amenities and Accommodations
Informational Flyers
- Enhanced Recovery After Surgery (ERAS) (also available in Spanish)
Online Heart Resources
- Adult Congenital Heart Association: 1-919-861-4547
- American Heart Association: 1-800-242-8721
- Cardiac Arrhythmias Research and Education Foundation: 1-800-404-9500
- Cardiomyopathy Association
- Children's Cardiomyopathy Foundation: 1-866-808-CURE (1-866-808-2873)
- Children's Heart Foundation: 1-847-634-6474
- Children's Heart Link
- Congenital Heart Defects: 1-888-222-4649
- Children’s Helpers Educating: Reassuring and Uniting by Sharing (CHERUBS): 1-425-888-2166
- Congenital Heart Information Network (CHIN): 1-215-493-3068
- Heart of a Child Foundation: 1-310-375-6617
- Heart to Heart Texas: 1-888-475-2787
- Hypertrophic Cardiomyopathy Foundation
- Kids With Heart: 1-800-538-5390
- National Association of Rare Disorders: 1-800-999-6673
- Pediatric Cardiomyopathy Registry: 1-617-923-7747 Ext. 376
- Pediatric Heart Network
- Pediatric Heart Research Association: 1-513-759-0250
- Ronald McDonald House: 512-472-9844
- Scientific Registry of Transplant Recipients (SRTR): 1-734-665-4108
- Texas Heart Institute at St. Luke's Episcopal Hospital
- UNOS Patient Website
Online Support Groups and Organizations
- Little Hearts, Inc.: 1-866-435-HOPE (1-866-435-4673)
- It's My Heart: 1-713-334-4244 or 1-888-HEART-07 (1-888-432-7807)
- Make a Wish
- Mended Little Hearts: 1-888-HEART-99 (1-888-432-7899)
- The Mended Hearts, Inc.: 1-888-432-7899
- Transplant Living by UNOS
Organ Donation
- Donate Life America: 1-804-377-3580
- Donate the Gift of Life
- Early Childhood Intervention (ECI): 1-800-628-5115 (Home therapy for children 3 years of age and under)
- Life Gift: 1-713-523-4438
- Texas Medical Center: 1-713-795-0000
- United Network for Organ Sharing (UNOS): 1-804-782-4800
Transplant-Related Educational Materials
- American Society of Transplantation: 1-856-439-9986
- American Organ Transplant Association: 1-800-373-1646
- Association of Organ Procurement Organizations: 1-703-556-4242
- Gift of Life Foundation: 1-813-855-7600
- International Society for Heart and Lung Transplant: 1-972-490-9495
- International Transplant Nurses Society
- Organ Procurement and Transplantation Network (OPTN): 1-804-782-4800
- Transplant Living by UNOS
- Transplant Recipients International Organizations, Inc. (TRIO)
- TransWeb: All About Transplantation and Donation: 1-734-998-7314